Fundraiser finished
Mariola Siorek - main photo

I need to find out what I was up against!

Fundraiser goal: Genetic test wes

Fundraiser organizer:
Mariola Siorek, 58 years old
Wrocław, dolnośląskie
Bronchial asthma, hypertension, unspecified myopathy
Starts on: 16 July 2020
Ends on: 20 July 2020
PLN 10,230(160.27%)
Donated by 138 people

Pledge 1.5% of tax

KRS0000396361
Purpose of 1.5% of tax0071753 Mariola

Fundraiser goal: Genetic test wes

Fundraiser organizer:
Mariola Siorek, 58 years old
Wrocław, dolnośląskie
Bronchial asthma, hypertension, unspecified myopathy
Starts on: 16 July 2020
Ends on: 20 July 2020

Fundraiser result

Drodzy Przyjaciele,
W ciągu 3 godzin zebraliście całość kwoty. Bardzo Wam dziękuję. To pokazuje jaką siłą dysponujemy – w gromadzie nic nam się nie oprze, nawet badanie nierefundowane przez NFZ musi się poddać pod naporem :)
Badanie jest już opłacone, czekam na termin pobrania materiału. Jeśli możecie/chcecie – komentujcie na mojej ścianie na FB pod postem dotyczącym zbiórki, będę sobie czytać Wasze komentarze czekając na wyniki, bo trochę nerwów pewnie będzie :)
Nadwyżka ze zbiórki może pozostać na moim koncie w Fundacji Siępomaga. Jeśli się okaże, ze leczenie jest możliwe – będzie na dobry początek tego leczenia. Jeszcze raz Wam dziękuję, trzymajmy się razem, a ten rozdział pod tytułem „Zbiórka” już się zakończył, więc go zamykam :)

Dear friends,
You collected the entire amount within 3 hours. Thank you very much. This shows what strength we have - nothing can resist us in the group, even a medical research not reimbursed by the National Health Fund must give up under pressure :)
The medical research is already paid for, I am waiting for visit to give tissues (blood??? Or what???) for examination. If you can / want - comment on my wall on FB under the post about the fundraising, I will read your comments while waiting for the results, because I will probably have a little nerve :)
The collection surplus may remain on my account at the Fundacja Siepomaga. If it turns out that treatment is possible - it will be a good start for this treatment. Thank you again, let's stick together, despite this chapter titled "Collection" has already ended :)

Fundraiser description

Dear friends

I have to ask you for help in an important matter for me - diagnosis of my health problems.

Those who know me noticed that I have been struggling with loss of mobility for some time. I cannot walk long distances. I walk more and more slowly, with great effort. If I handwritten this message – you would not be able to read it, because letters would be shapeless. 

I use technology to hide these shortcomings, but I can see that those changes are progressing. I try to live and work normally as much as I can, although I feel muscle pain and a constant feeling of physical exhaustion and overload every day.
I fight with symptoms - I go to appointments with specialist rehabilitation, who elevates my problems for a day or two. 

But I have been looking for reasons for my situation. After five years of reaching out to various doctors I got a preliminary diagnosis: myopathy.  

This means that medical examination confirmed abnormal muscle structure and their permanent loss, but this does not indicate the root cause of this situation. 

I need to do genetic tests to find out the causes of the problem. A professor at the Genetic Counseling Center says that this is the only way to find out if and how to treat me.

I hold on to this hope that healing is possible. I would love to go canoeing again, swim in the lake or just go for a stroll. Each of these things is impossible for me. I am 53 years old, my friends run Runmageddon and I wash the floor in a room in 3 rounds divided by long rests.


I hold on to this hope that healing is possible. A test that shows the direction of treatment is very expensive. Please help me to collect the money. I count on you. Please help .. Every zloty matters!

Mariola

Donations

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    PLN 30

    Trzymaj się Mariola!

  • Anonymous donation
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    PLN 50

    Dla Toasmasterki od Toasmastera 😊

  • Anonymous donation
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    PLN 50
  • Anonymous donation
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    PLN 100

    Mariola trzymaj się.

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    PLN 50
  • Anonymous donation
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    PLN 200

    Życzę siły i konsekwencji w walce z chorobą

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