A desperate fight for life has started! Save Maria from SMA!

The family had to make a difficult choice! We decided to raise funds just for one daughter, Maria! HELP! 

The story of our two daughters has a lot of dramatic turning points. 

Today, we have faced another one… 

Hanna and Maria both have SMA—a disease that destroys their tiny bodies. If untreated, it can lead to tragedy… We tried hard to let both of them receive gene therapy, a drug that stops the disease and allows a normal childhood! Unfortunately, we have learned that it won’t be refundable for our children… 

It is why we started raising funds for our little daughters, although we knew we might fail. The amount of money we needed was ENORMOUS. 

Unfortunately, the time has come to make a dramatic choice…

First and foremost, we already know that we won’t make it on time to collect funds for both of our daughters. Second of all, we found out from the latest consultations with the specialists from the Belgium clinic that Hanna has little or no chance of receiving gene therapy since she is already 2,5 years old and her weight is too high…

That terrible news broke us, but we must act fast since we have two sick children…

We have decided to make a dramatic change in our fundraiser in favor of our younger daughter Maria and raise funds just for her. 

Because she’s little, she has a better chance at a normal life! If only we succeeded and Maria underwent gene therapy…it’s possible under one condition, though - finishing the fundraiser! 

Thanks to you and your donations at Siepomaga. pl, we are at the halfway point! We are trying our best to get to the finish line, so we are begging you from the bottom of our hearts - please help us! 

We can see what SMA does to Hanna… If we don’t stop the disease, Maria will have to share the same fate! And since she’s in a better position, we had to pick her, although we love them both so much… 

We refuse to think about the future. We don’t know if we regret our decision someday. Currently, it’s the only reasonable choice. And although our hearts are broken, we must pull ourselves together and fight - for Maria. 

Please, stay with us and do not judge us… We believe that we have made the best decision for our beloved daughters…

Maria’s and Hanna’s Mom and Dad