Matka i syn walczą z tą samą chorobą – dystrofią dystalną❗️Potrzebna pomoc, by nie przerwać leczenia❗️

It is not easy to be a single mum of a disabled child. Yet what is even more difficult is to try to understand why the most innocent – the helpless children – are forced to suffer from severe conditions. My strongest desire has always been to protect my son from pain. However, it is hard to beat an unfortunate gene combination that is responsible for Mateusz’s suffering: recurring pain and injuries and the resulting fear of having to go through another day. The only chance to reduce my son’s suffering is an extremely costly surgery (not covered by the National Health Service in Poland), followed by physical therapy.

The number of conditions Mateusz suffers from is overwhelming: drug-resistant epilepsy, Ehlers-Danlos syndrome, Marfan syndrome, muscular dystrophy, muscle contractures, floppy muscles, asthma, a number of allergies, depression and more. Everyday life has been increasingly gruelling for both of us.

Ehlers-Danlos Syndrome is a rare, progressive disorder that put my son in a wheelchair 6 years ago. The condition has been affecting his joints, resulting in intense pain, and has effectively made it impossible for Mateusz to walk.

My son dreams of running around and playing football like a regular boy. I often see him watch his friends with envy and tears as they run and jump effortlessly. What Mateusz has lost is an ordinary childhood. I cannot turn back the clock but I do want to fight for his future.
My son has been qualified for a surgery in Paley European Institute – a treatment that would make it possible for him to walk again. This is a chance for my son to live a happy and fulfilling life – however, while the treatment is covered by health insurance in EU countries such as the UK, National Health Service in Poland does not pay for it. I need to collect the money on my own; this is why I am asking for your help. The surgery is on 13th Feb 2022 and the clock is ticking! An advance payment of 46 000 zloty must be made as soon as possible. Please, do not look away!

It is not easy to be a single mum of a disabled child. Yet what is even more difficult is to try to understand why the most innocent – the helpless children – are forced to suffer from severe conditions. My strongest desire has always been to protect my son from pain. However, it is hard to beat an unfortunate gene combination that is responsible for Mateusz’s suffering: recurring pain and injuries and the resulting fear of having to go through another day. The only chance to reduce my son’s suffering is an extremely costly surgery (not covered by the National Health Service in Poland), followed by physical therapy.
The number of conditions Mateusz suffers from is overwhelming: drug-resistant epilepsy, Ehlers-Danlos syndrome, Marfan syndrome, muscular dystrophy, muscle contractures, floppy muscles, asthma, a number of allergies, depression and more. Everyday life has been increasingly gruelling for both of us.

Ehlers-Danlos Syndrome is a rare, progressive disorder that put my son in a wheelchair 6 years ago. The condition has been affecting his joints, resulting in intense pain, and has effectively made it impossible for Mateusz to walk.

My son dreams of running around and playing football like a regular boy. I often see him watch his friends with envy and tears as they run and jump effortlessly. What Mateusz has lost is an ordinary childhood. I cannot turn back the clock but I do want to fight for his future.

My son has been qualified for a surgery in Paley European Institute – a treatment that would make it possible for him to walk again. This is a chance for my son to live a happy and fulfilling life – however, while the treatment is covered by health insurance in EU countries such as the UK, National Health Service in Poland does not pay for it. I need to collect the money on my own; this is why I am asking for your help. The surgery is on 13th Feb 2022 and the clock is ticking! An advance payment of 46 000 zloty must be made as soon as possible. Please, do not look away!

It is not easy to be a single mum of a disabled child. Yet what is even more difficult is to try to understand why the most innocent – the helpless children – are forced to suffer from severe conditions. My strongest desire has always been to protect my son from pain. However, it is hard to beat an unfortunate gene combination that is responsible for Mateusz’s suffering: recurring pain and injuries and the resulting fear of having to go through another day.

The only chance to reduce my son’s suffering is an extremely costly surgery (not covered by the National Health Service in Poland), followed by physical therapy.
The number of conditions Mateusz suffers from is overwhelming: drug-resistant epilepsy, Ehlers-Danlos syndrome, Marfan syndrome, muscular dystrophy, muscle contractures, floppy muscles, asthma, a number of allergies, depression and more. Everyday life has been increasingly gruelling for both of us.

Ehlers-Danlos Syndrome is a rare, progressive disorder that put my son in a wheelchair 6 years ago. The condition has been affecting his joints, resulting in intense pain, and has effectively made it impossible for Mateusz to walk.

My son dreams of running around and playing football like a regular boy. I often see him watch his friends with envy and tears as they run and jump effortlessly. What Mateusz has lost is an ordinary childhood. I cannot turn back the clock but I do want to fight for his future.

My son has been qualified for a surgery in Paley European Institute – a treatment that would make it possible for him to walk again. This is a chance for my son to live a happy and fulfilling life – however, while the treatment is covered by health insurance in EU countries such as the UK, National Health Service in Poland does not pay for it. I need to collect the money on my own; this is why I am asking for your help. The surgery is on 13th Feb 2022 and the clock is ticking! An advance payment of 46 000 zloty must be made as soon as possible. Please, do not look away!