Join us in a fight for a better tomorrow for Mateusz!

We adopted Mateusz right after he was born on 14 February 2018. We felt joy and affection at the same time! It was hard to put in words such beautiful emotions. 

Mateusz’s development was slower from the beginning, unlike in children his age. When he was 8, he was lying down most of the time and able to raise his head slightly.

He did not acquire any new skills. The social workers told us that it was common behavior in the wards of the children’s facility. They assured us that Mateusz was fine. However, life turned out differently. A marathon of appointments with doctors, physical therapists, and educators began. Each one offered a different diagnosis—autism, intellectual disability, physical retardation, aphasia… We finally met a fantastic professor of pediatric neurology who did not entirely agree with previously made diagnoses. After analyzing all medical fields, we decided Mateusz underwent an expensive whole exome sequencing (WES), which unveiled the truth about his health and finally gave us the answers to our questions. The test detected a mutation in the KCNQ3 gene. KCNQ3-related disorders include benign familial infantile epilepsy (BFIE), which usually disappears when a child is two years old. In Mateusz, however, it caused brain damage to the extent that he cannot talk, barely maintains eye contact, and is entirely dependent on us—he cannot eat or dress without help. He is unable to voice his thoughts and desires. Despite desperate questions asked, he remains silent. Mateusz cannot express his emotions or deal with them. His frustration caused by his inability to communicate often translates into aggression towards his younger brother. He also displays self-aggression by hitting his head against a toy. He is unable to focus, unlike other children. Due to too many stimuli around him that he finds overwhelming, he becomes hyperactive and often aggressive. 

On the plus side, he can walk and run. His gait is unsteady but still! Unfortunately, due to a vision defect, he has trouble assessing the distance and walks straight into objects if unguarded. He is a great jungle gym climber, though, and he loves to play on the mattress, which makes him giggle. These are the moments that show us that he is present. He’s even started to communicate through picture communication symbols (PCS). He takes my hand and points at something he wants. Those little milestones inspired us to search for alternative treatments for Mateusz in addition to epilepsy medications. 

That is how we came across stem cell therapy in Bangkok, Thailand. It consists of 8 doses of stem cells administered within 23 days (the cells are fresh and unfrozen, unlike in Poland) and intensive physical therapy. We believe the treatment will help manage epilepsy and improve sight, focus, concentration, and gait. And maybe he will say MOM for the first time? That’s what we dream of. Not a balloon flight or bungee jumping.  We also believe that thanks to stem cell therapy our son’s life will improve, and he will develop like other children! 

Unfortunately, we cannot afford the cost of treatment! We used to support various fundraisers, and now we are on the other side, as those in need. This time, we turn to those who are not indifferent to our situation. Please donate for A BETTER FUTURE FOR MATEUSZ. He still has a chance to live normally if we raise the required funds and finance his therapy…

Parents