I am fighting for breath for my daughter! Every penny is another second of my life!

URGENT!
Charity collection verified by the Siepomaga Foundation
Supported by 7,633 people
321,268.24 zł (24.56%)
To reach our goal: 986,494.76 zł
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Goal
treatment of cystic fibrosis

Michał Peryt, 45 years

Radom, mazowieckie

Mukowiscydoza

Started: 23 February 2021
Ends: 01 August 2021

ATC Classification System R07AX02 ATC Classification System R07AX

It’s 3:20 at night. I open my eyes and I see the same white ceiling, the same white hospital walls. I take a breath... the pain is sharp, it makes my eyes water, but I am thankful for it, because it means that I’m still alive. Hospital stays take away so many of my precious moments, they are one of my life’s few certainties. I’ve been told that I don’t have much time left since I was 4. Doctors used to tell my mom to not get too attached to me, to not hold out too much hope. I was a small child, but I understood more than they thought. Even though I didn’t respond, I didn’t ask any questions, these comments and my diagnosis weighed on me more than anything should on a child that age. We don’t give children enough credit for how intuitive and perceptive they are. Now that I think back to that time I wish I hadn’t heard what I did, I hadn’t understood...

Dennis Genpo Merzel said that “It is impossible to rush a river or sunrise or make trees grow faster than they do. Everything happens when it's ready to“. But I’m not ready yet. I have a wonderful family, currently 300 kms away.. Me in the hospital, my wife and daughter at home. Lately this situation feels like a constant. My daughter is 8, she also doesn’t ask questions, but she understands. I see the tears in her eyes, the sadness in her face when I tell her that I need to go to the hospital again. She knows that one of these days I might not come back. But I live for her – I dream that I will be able to see her grown up, to be there for her graduations, to meet her first boyfriend... Walk her down the isle...

I have cystic fibrosis – more specifically a double mutation on the delta F508 gene, diabetes treated with insulin, chronic obstructive lung disease, chronic respiratory disease. My lungs work at 12% capacity. I’m not giving up, but I’m slowly facing the facts. I’m fighting, but my body is slowly starting to fail me. As many times as healthy people curse their life is as many times people like us pray for it. Remember when as a kid you would take bets with your friends in the playground who would be the first one to run the local corner shop? Well in the hospital we take bets which one of us will still be alive in 6 months, a year, 2... But there is a new hope for me. A new drug that can give me the chance to live a longer life. It’s a new generation drug, a “causal” drug that treats the reason for my condition and not just its effects. Unfortunately in Poland it isn’t refunded through the National Health Service.

The monthly treatment cost is almost 100 000 zł, which means a staggering 1 300 000 zł per year. Financially for me this is completely unattainable. And because of this today, from my hospital room with white walls, I ask you for your help with all my heart. Every amount of money you are able to contribute buys me precious time with my family. So much for so little...

Charity collection verified by the Siepomaga Foundation
Supported by 7,633 people
321,268.24 zł (24.56%)
To reach our goal: 986,494.76 zł
Donate Donate