Help her, please! The situation is dramatic - nobody in Poland is able to help Nadia! She is suffering terribly, she is losing her breath ... The spine is so distorted that it crushes the internal organs! Nadia is just lying, unable to get up ... She needs a surgery. It is the only rescue that will save Nadia from such terrible torment ... Therefore, we ask for your help, because even the smallest amount of money is very important! We must make another miracle, save the most precious - our child's life ... We must also act quickly, otherwise there will be nobody to be saved!
Nadia’s mum, Patrycja, says: „Nadia used to be so smart, talkative, cheerful ... Wherever she was, she spread positive energy. Everyone looked only at her, everyone wanted to be close to her. Now everything is different. That spark in Nadia's eyes went out. The pain took it ... Terrifying, animal, inhuman pain. Nadia is so quiet, so moody, she cries all the time. ... My child is slowly disappearing … and I can do absolutely nothing about that!”
Nadia is slowly being killed by her spine. The implant that was supposed to hold it failed ... Scoliosis has won. It twisted not only the spine but also the implant! The deformed spine presses and crushes the organs. It takes their place. It causes terrible pain. It takes away the lust for life, leaves only heavy breathing, terrible tiredness ... It takes the joy, brings the pain.
She was born so tiny, weighing only 1,800 grams. I clearly remember that day ... The doctor came and said he had both good and bad news. The good one was that Nadia was alive. The bad - they were not sure for how long. I couldn’t believe that. I didn’t want to. They suspected that Nadia had some genetic defects. She had some dysmorphic disorder, one half of her body was completely different from the other ... Left hand, left leg and even the cheek, and the ear - everything on the left side was smaller than on the right.
Nobody knew what was wrong with Nadia ... Nobody. Searching for the answer was like walking in the dark... There were many tests, a lot of diagnoses were made. It turned out to be the Silver-Russell syndrome, an extremely rare anomalies syndrome... Sick children are short, they eat little food, they have problems with some organs ... There are a lot of anomalies, but not all of them always occur.
Surprisingly, Nadia survived. However, I was being prepared for the worst, that my daughter would become completely disabled. They were wrong. After 2,5 years, a breakthrough came suddenly. Nadia, who was not supposed to say a word, suddenly started talking, not supposed to walk - she began to crawl. She grew up to be such a bold, brave girl with a positive attitude to life. ... I don’t know where this joy, this strength comes from. And everything would be fine, but for this spine ... Scoliosis began to progress, the spine was distorting with an alarming rate. Nadia didn’t grow, did not put on weight ... It was like a vicious circle - the doctors didn’t want to give her a growth hormone, because they were afraid of scoliosis, others didn’t want to treat scoliosis, because Nadia was too small!
The twisting spine soon became a deadly threat to Nadia ... The doctors tried to rescue her. They were fighting bravely, but unfortunately - unsuccessfully. Nadia suffered a lot. ... First, lengthening the spine using a method called halogravity traction. The method which is used in the most severe cases. A special ring is put on child’s head for 3 weeks. It is attached to a special harness... This method is extremely painful. Then there were two scoliosis surgeries. There was going to be just one planned surgery, but one of the screws in the spine broke... Suffering was as extensive as a post-operative wound. Nadia's back was cut from her neck to the buttocks, and so far it has not healed ... Nadia was screaming with pain, and I was screaming with helplessness.
Nadia was in a coma for three days, she was fighting for life. A Iife-support machine had to be used because she couldn’t breathe. ... One of the lungs pressed by scoliosis didn’t start working. It seemed to me that those had been the worst days in my life. Unfortunately, these were yet to come ... It turned out that the surgeries didn’t help. Scoliosis is still getting more and more advanced. Nadia suffered in vain. Now she cannot even take a step. She's just lying, staring sadly at the ceiling ... She is so lonely. Nadia loves people so much, she loves her school ... The fact that she cannot get out of bed is the biggest punishment for her. How much more will she suffer ...
Where have we looked for help? Everywhere. We've been to dozens of doctors. The best in the country. They threw up their hands. Everyone. Nadia is one of the most difficult cases. She is small, short, with such a rare syndrome of congenital malformations, such serious scoliosis. In Poland, there is no possibility of further treatment - this is the sad truth ... However, her spine and her life can be saved in the USA. Doctors from the NewYork-Presbyterian Hospital will treat Nadia ... They will perform a surgery to remove the implant that threatens Nadia's life. Then Nadia will have to have the second halogravity traction for about 2 weeks, and then there will be another surgery to put in appropriate implant. This is a very complicated procedure. Medical care in the US is the most expensive in the world. We have to pay a huge amount for Nadia's life and health. This amount is unimaginable for an ordinary man ... And there is no time, because deformation is getting worse and worse. Therefore, I’m asking, no - I am begging for your help ...
As Siepomaga, we join Nadia's mother's request and we ask for your support! Life of a little girl shouldn’t be a pain or a race against time... In the case of Nadia, it is both. We have to save her... In the past we managed to win similar fights, now we have another fight ahead of us. We believe that this time we will also succeed ... because where else, if not together and not here...?