A tiny Nela and a terrible disease. Only you can give hope!

Nela was born with a very rare genetic disease de Grouchy syndrome. As a result our daughter cannot develop and grow properly. She is over one year old and still cannot sit, grab things, support herself, she looses contact with the surrounding world and cannot play... Often, when we look at her, our hearts are broken and burst with regret, because we would like to help her so much, and we are not able to. The disease is still a mistery and the only thing we can do for our baby is to rehabiliate her. Rehabilitation is very costly, therefore we are asking you to open your hearts for our baby daugher and help us with the collection of necessary funds for treatment.