Nelly fights for her future every day - please help!

Now we know. The diagnosis is a nightmare, the worst possible...our daughter Nelly suffers from the Rett syndrome, a genetic disease. She will never recover and the symptoms will gradually worsen. Perhaps some will break down start crying – but our daughter is alive and it’s up to us to make her life as long and as happy as possible...There is a chance to achieve that with your help for which we are begging! 

Here is our story: 

Nelly is the apple of our eye, our dream and long awaited daughter. She was born a healthy girl - that's what we thought at the time. When she was born, I was the happiest mother in the world. Nelly was sweet and calm, always smiling and ready to explore the world. Now, however, I am the mother of a little girl with a serious condition who badly needs your help. 

Nelly’s motor skills development was delayed compared to other children her age but her intellectual development seemed on track in her first year of life. After her first year is when the first disturbing symptoms started to appear. Thus, begun a long road, with visits to many doctors and specialists to work out what was happening to our little cherub. 

Concerned, we started a program of rehabilitation (correction) to get her back on track. We thought she would catch up to others her age. However, this was not the case. 

We put a lot of effort and energy into her rehabilitation, unfortunately her situation has currently gotten worse. She lost her previously learned abilities; although she learned how to crawl again her body control is steadily deteriorating. Working with the specialists helps but it is time consuming and costly. 

We are now concentrating our efforts on having Nelly walking again, doesn’t sound like much but it’s a huge task! 

Our biggest worry is Nelly’s fear – she is afraid of any new physical task; she is afraid of consequences. This results in her being a prisoner in her own body; it is heartbreaking to see her try and fail... 

This anxiety attacks become more frequent; consequently, she needs to be under constant supervision and care by the family and doctors. Nelly is no more talking and walking. She also developed serious gastrological problems which further debilitate her daily life. 

The sickness is unrelenting in its progress. But for all that there is a ray of new hope! 

The stem cells transplant available in Bangkok is a chance to stop the progress of her sickness and reversal of the current symptoms! Seeing other children who received this treatment we can see how successful it can be. Unfortunately, the treatment is quite costly.. 

Our days seem to be a struggle to support and provide Nelly best care, coupled with fear of the next crisis. Please help us fight for Nelly and her better future. Each donation is a life changing for her – it is easier with your support and help!