Nelly fights for her future every day - please help!

Nelly is the apple of our eye, our dream and long awaited daughter. She was born a healthy girl - that's what we thought at the time. When she was born, I was the happiest mother in the world. Nelly was sweet and calm, always smiling and ready to explore the world. Now, however, I am the mother of a little girl with a serious condition who badly needs your help.

Nelly’s motor skills development was delayed compared to other children her age but her intellectual development seemed on track in her first year of life. After her first year is when the first disturbing symptoms started to appear. Thus, begun a long road, with visits to many doctors and specialists to work out what was happening to our little cherub.

Concerned, we started a program of rehabilitation (correction) to get her back on track. We thought she would catch up to others her age. However, this was not the case. We put a lot of effort and energy into her rehabilitation, unfortunately her situation has gotten worse.

Our daughter is turning 3 in May. She lost her previously learned abilities: she completely stopped talking, her concentration deteriorated, she stopped being interested in toys, she began to have breathing problems (hyperventilation), she became very weak, she lost all her motor skills, and still has not learnt to walk. There were also attacks and behavioural regression. 

After many consultations and tests, doctors suspect a genetic disease called Rett syndrome. We are still waiting for results of genetic testing. If they confirm this cruel diagnosis, we will face expensive medical treatments and rehabilitation for Nelly.

We have to do everything for our daughter, so we are asking for help. We have set up this fundraiser to alleviate some of the costs. Regardless of the final diagnosis, Nelly needs intensive rehabilitation and a device that will allow us to communicate with her somehow - your help will make this possible. We would like to thank you from the depth of our hearts for any support shown and any amount donated.