SMA is taking my child away! Oliwier needs the most expensive drug in the world. Help me please!

CRITICAL! My son Olivier was diagnosed with SMA1, a deadly disease that weakens muscles little by little, leading to the worst. Please help me free my child from death!

Here is our story:

Olivier was born on January 5, 2022. We were so happy when we touched his hands for the first time, looked at his little eyes, and hugged him. He was long awaited by us and his older siblings. My child's development was as expected. Nobody could have imagined that in the following weeks, we would be confronting terrible news...

Within two months, my son lost the ability to lift his legs, and his hands became noticeably weak. We started rehabilitation, but it didn't work.

The fourth neurologist we consulted suspected SMA. We couldn't believe our son carried a gene responsible for such a cruel disease.

The test results came when Oliver turned six months old. Instead of celebrating, we cried over this death sentence. I hugged Oliver with all my strength, telling him how much I loved him, whereas deep inside, I felt terror, helplessness, and incomprehension.

Babies with SMA die without treatment. Oliver's condition is worsening. As a result of an infection, he developed critical respiratory problems. Due to the cough that prevented him from swallowing, doctors had to insert a nasogastric tube into his body to avoid the worst.

We had plans and dreams ... First holidays together, birthdays, and family time. We set up Oliver's bedroom where he would take his first steps. Our dreams were shattered. The only thing that matters now is the fundraiser that would enable us to save my little son from death. Time is of the essence!

Had he been born two months later, he would have been on the list for the SMA screening for newborns in our province. Unfortunately, fate hasn't been on our side. The treatment path ahead of us is long and dangerous. We desperately need your support to allow Oliver to live a normal, happy childhood with his siblings.

Oliver needs the most expensive treatment: gene therapy. It is a matter of life or death, and time is running out! Please don't be indifferent and give him a chance!

Mom and family