Silence, complete silence......when it's with you for a few hours, you fell calm. But when these hours turn into years, fear arises. From the day since our daughter was born fear acompanies her and us. Our daughter was born hearing impaired. Since then, our lives have been a struggle for her to hear us fully. Please, help us to do this.
Moments of happiness caused by the birth of Kinga passed as soon as they appeared. The doctor came to us and what he said riuned everything. Kinga was born with hypoplasia of the auricle, with unilateral hearing loss, a deformed cheek and facial nerve palsy. We started the war for our child! Specialists ENT specialists , neurologists, geneticists, speech thepists - everyone wanted to diagnose and treat her in their own way. Our hearts were breaking, we could not imagine that Kinga would never hears us. She had a series of test under general anesthesia. It is a terrible feeling to hold on the hands of a child who relaxes under the influence of given medications. Before the age of two, we were able to get a private consultation at the World Center of Speech and Hearing in Kajetany. Then we saw the light in the tunnel! Every visit we received new information: how to proceed, how to practice so the speech could develop (because fortunately Kinia hers from the other ear) and we succeeded. A month after third birthday, our Kinia spoke her first words!
Until the age of 5, we waited to do a head tomography to show the condition of the middle ear. Unfortunately, the tomography did not give us hope to improve the situation. The construction of the middle ear turned out to be rudimentary, which means that the available implants could not be impanted...The only solution turned out to be a band with an external hearing aid that adheres to the bone and conducts sounds through it. Kinia is now 10 years old. I can feel the surprised glances of people who notice that our daughter hasn't got an ear. Other children can be ruthless. They ask why Kinia looks different. It hurts both of us. Last year, we received a permission to perform an ear reconstruction surgery. Finally, we were informed that the operation is planned for 2032. It's in 12 years....Kinga will be 22 then. Shock, disbeleif, total chaos and misinformation. The worst was for us to tell her about it because she has been waiting for it so many years and has been experiencing an internal drama in her own way. However, it motivated us to take an action and we found the best possible solution. In August, Kinga and I were consulting a doctor at The Hearing Center in California. The conference was led by a great specialist - Dr. J. Tahiri who reconstructsears with the innovative method of Medpor. We have learnt more during the conferences and individual consultations than for 10 years in Poland.
Kinia is to have a dislocated ear canal, reconstructed auricle and transplanted adipose tissue around the deformed bones of the jaw and the jaw. If the necessary amount of money is collected on time, the operation can take place within the year!
Sometimes Kinia gets sad, is ashamed, but we hope that the next year she will not spot the difference between her and her colleagues. Please, help our daughter! Only thanks to your support Kinga can hear on both ears, her life could be better!
Kinga's parents, Anna and Jarosław