In April 2011 we ended up in the hospital with our scared son, because of swollen nodes we noticed on his neck. We had him tested and then two weeks later Rubik got diagnosed. What we found out was heartbreaking news for us : 4 stage neuroblastoma, which is the most advantage stage and lots of metastases all over his body.We were shocked and terrified.
The happy life of our little boy turned into deep suffering. Today it seems like he just doesn’t remember what living a happy life means.
Pain, suffering and depressing atmosphere that oncology clinic create is hard to handle both for him and for us.
After few months of aggressive chemotherapy we went all the way to Wroclaw with Rubik to undergo a surgery. However it turned out that the doctors were unable to remove the whole infected tumor and we were supposed to go back to Szczecin to continue the treatment. Finally we won, the tumor was gone and then the next step was a bone narrow transplant. The last stage was radiotherapy.
Over the 5 years our life seemed to be normal, we kept going to hospital back and forth to do some tests and procedures, but that’s all.
Everything changed in 2018 right after Christmas. Rubik was 12 at that time, we took him to hospital, because of terrible pain in the back. We did our best to help him feel better, but even morphine was not enough to relive the pain.
Not to mention that Rubik got paralysed, he wasn’t able to move his feet at all. We heard that he would never walk again. We were all devastated. Then Rubik got tested, but results didn’t show anything we should have been worried about. He didn’t have any problems with his back in the past, so we were pretty calm and convinced everything is alright.
But then cruel fate knocked upon the door…
Once again diagnosis was heartbreaking - cancer returned after a period of remission and it hit really hard.
The neurosurgeons didn’t give us any hope that Rubik will ever get back on his feet, because the nerve core has been compressed for too long.
We felt like God has left us - he cannot hear or see us, completely hopeless.
After the spine surgery and rehabilitation Rubik is learning how to take his first steps again and he is getting better.
On June 24th, we were told that there are no other treatment options we could use for Rubik. The only chance left is Anti-GD2 immunotherapy for neuroblastoma that unfortunately is not refunded in Poland, and so we need to pay for it.
Right now Rubik’s life is at stake. Without therapy , we will probably wait for his death. This is the only chance for him. This is why we are begging for help.
Thanks to the parents of one little angel we met- Gabrysia Rekawek, a friend from the oncology center, who unfortunately passed away , we got some funds that will cover one half of the treatment. We just need to collect the other half. And this is why we are begging for help.
Thank you guys, we will never forget it!