So our child will never have to suffer again... Please, help us!


Imagine that your legs are constantly tense and heavy as lead. Imagine that you have to fight your body every day, for every step, for every motion.

Think about how desperate parents feel when their beloved child suddenly cannot get up from the floor?

Sandra is a little girl whose fitness has been taken away by a brain haemorrhage...

It was December 20, 2019, and I was waiting in the hospital waiting room for the result of our daughter's head MRI. I was all nervous, but I was hoping that, after two months of anxiety, somebody would help us and finally make an accurate diagnosis.

Until then, no one knew why our child suddenly started to have problems with keeping her balance. Days passed and our daughter's condition was getting worse and worse... First Sandra started to limp on her left leg and a few days later she could not walk at all!

We watched in despair how a child, who was running a few days earlier, suddenly could not get up from the floor. She was fit, she couldn't climb the stairs, she couldn't climb her favourite armchair. A week before her second birthday, Sandra lost almost all her motor skills.

And when we thought that this nightmare would never end, we finally found the answer. The brain resonance showed changes in both hemispheres. The worst predictions turned out to be a reality... Our daughter suffered a haemorrhage! We were lucky to have her alive, but that was the end of her carefree childhood. Almost all the motor skills that Sandra had acquired throughout the two years of her life began to disappear.

We had to swallow tragic information very quickly. There was no time for despair... Thanks to the quick action Sandra started an intensive rehabilitation - it was effective from the beginning. Thanks to her hard work she was able to stand on her own feet again! 

Sandra is a wise girl. Her body is a prison, a cage that won't let her walk.

When we thought it would only get better, fate decided to strike another blow. The last X-ray of my daughter showed that the bone in her left hip is starting to come out of its acetabulum. The increased muscle tension started to take its toll, although not even a year has passed yet. 

With our daughter's growth, it will only get worse. The muscles will not be able to keep up with the growth of the bones. Contractions, joint deformities and terrible pain are going to start, which will make it impossible not only to move but also to continue the rehabilitation. 

We must take action! As soon as possible! We already know that rehabilitation is not enough to fight for our daughter's fitness. There is a rescue, but its price frightens us! We, alone, cannot help our child! This helplessness is tragic for us... We need Your help! We need Your support!

The procedure called selective dorsal rhizotomy is a chance for us to deal with the muscle tension. SDR is a complicated procedure on the spinal cord and since our daughter's case was not obvious, we must put her health in the best hands.

It is only thanks to this surgery that our daughter's legs will be more capable of movement and the muscles will not remain contracted. According to doctors from the USA, after the surgery, Sandra will be able to do everything that healthy children can do! This is a huge hope for us!

Sandra is still a little girl, but she does not complain about her fate at all. She endures her daily rehabilitation with a smile on her face and tries to catch up with her healthy peers at all costs. 

We keep asking ourselves, how long will she be able to take it? Each leap of growth is a return to the starting point. As Sandra grows, her spasticity grows as well, and pathological tension of the muscles may cause our daughter to be unable to walk again. That gives us sleepless nights…

Our daughter has a chance for a new life. We have only one dream to see her again with all that energy! This stage can become just a painful memory for us... Please, extend a helping hand to us! 

Sandra’s Parents