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Expensive therapy is her last resort! Help!

Fundraiser goal: Intravenous immunoglobulin (IVIG) therapy

Fundraiser organizer:
Sia Chavda, 17 years old
Mosina, wielkopolskie
Autism, symptomatic epilepsy
Starts on: 27 July 2023
Ends on: 3 February 2026
PLN 14,901(4.94%)
Still needed: PLN 286,454
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Phone number
75365
Text
0313163
Cost PLN 6.15 gross (including VAT)
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Purpose of 1.5% of tax0313163 Sia
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Regular support provides Sia a sense of security and help in a difficult situation, also after the end of the fundraiser.

Fundraiser goal: Intravenous immunoglobulin (IVIG) therapy

Fundraiser organizer:
Sia Chavda, 17 years old
Mosina, wielkopolskie
Autism, symptomatic epilepsy
Starts on: 27 July 2023
Ends on: 3 February 2026

Fundraiser description

My daughter Sia has been suffering from developmental disorders ever since I can remember. When she was little, she didn't react or respond when I called her name or didn't say she needed to use the potty. Today, she is 15 years old and has her dreams and plans. Unfortunately, her disease dictates the way she behaves and excludes her from social life, which is a great deal for every teenager. 

After switching medications, her condition slightly improved. It did not solve the problem, though. It wasn't until 2017 that she was diagnosed with anti-NMDA receptor antibodies and qualified for an intravenous immunoglobulin (IVIG) therapy - an insurance-covered medication program. 

Thanks to IVIG treatment, antiviral medications, and antibiotics, Sia's health has significantly improved  - her intellectual disability changed from moderate to mild. Sadly, my daughter still acts out aggressively. She screams, doesn't control herself, and sometimes when we go out, she pushes others onto the street. 

Sia knows that her actions result from the disease. However, it doesn't make her feel better at all. She would love to make friends and be healthy like her peers. She keeps asking me why she's the one who is sick. 

From my experience, what calms her down the most is the immunoglobulin therapy that makes her seizures less frequent. Although she will require the IVG for the rest of her life, she's become a better, happier person who can control the disease. 

Unfortunately, the insurance-covered medication program has been stopped due to the lack of funds from the government. We try our best to enroll Sia in another program. Meanwhile, we are paying for the immunoglobulin therapy out of our pocket. The IVG is the only treatment that can help Sia defeat the disease. Despite its enormous costs, we can succeed - all we need is your support! 

Beata, the mother

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