This disease is killing my son❗️Only gene therapy can save him - please help us❗️

It's heartbreaking to learn that your child is terminally ill and there is no hope left. Pain takes over your body to the extent that you cannot move or catch your breath. Everything else doesn't matter anymore... 

Sławek, my son, was a healthy baby. He is intelligent and talented. He used to be fit and loved judo. He engaged himself in extracurricular activities. 

Last year, he fell during horse riding and broke his leg. He underwent surgery that involved inserting a metal element into his limb. Unfortunately, months later, Sławek had his blood examined, and the results came out poor. The doctors referred him to a geneticist, and after numerous examinations, we heard the diagnosis - Duchenne muscular dystrophy.  

Our world fell apart. I cannot lose my firstborn son, and his siblings cannot lose their older brother! 

The muscles of children suffering from DMD progressively degenerate. In the first place, it affects the legs, and then the arms, ultimately leading to disability. Over time, it attacks the pulmonary muscles, which results in breathing difficulties and suffocation. In the end, the heart stops beating, and the child dies. 

Regular exercises and physical therapy help patients maintain long-term fitness, although they cannot prevent death. My son does stretching exercises and goes to the swimming pool three times a week. We do our best to slow down the progress of the disease! It's not enough, though.

Until recently, DMD was incurable. The FDA, however, has approved the first gene therapy for Duchenne muscular dystrophy in which the missing dystrophin gene is delivered to the body. The outcomes of the treatment are reportedly amazing! 

Although the chances of receiving the gene therapy were small due to Sławek's age, the manufacturer and the clinic gave him the green light! He’s healthy, and the disease hasn't taken much toll on him yet. The good news is that the drug can only be administered to children who can still walk, so our son qualifies! 

Unfortunately, the cost of the treatment is enormous, and although we have already saved some money, we still need a lot. That is why we started the fundraiser. It's our only chance to save Sławek's life! 

I am asking you for help from the bottom of my heart. My son has his whole life in front of him! I don't want him to suffer and die when we still have a chance to save his life! 

Sławek's father