Stefan's heart can stop at any time! This surgery is a chance for life

He looks like normal healthy two years old who's exploring the world around him. Nothing indicates that he has ticking bomb inside his chest that may explode at anytime. Nobody is realizing that my son has won the battle with death a couple of times up to this moment...

Waiting for child is the most beautiful and unique time. And it was also for me. Untill I heard that my child is dying. Critical disorder and swelling of the heart leaded to moment that Stefan could die in any moment. Simple words „please do not stress yourself” were worthless. They don't calm you down or give any hope. I've been living in fear every day since and trembleing for his every move that I was feeling or not. I have never felt this fear in my life before.

Steven was qualified for innovative operation held when I was in pregnant.  The operation caused huge stress and was very emotional. I will never forget it.  The most important thing came after the surgery: the doctors told us that our beloved son was alive and safe.

Childbirth full of mixed  fear, joy and impatient, awaiting all at the same time. Finally our little hero showed up on this world and greet us with his loud cry. We were soo happy back then. Unfortunatelly our happines didn't last long. In a few hours after birth the situation of Stefan's health suddelny gone worse. Immediately a decision was made to transport our son to the Child Health Center, Warsaw. The doctors knew it was no time to waste. 8 weeks from this time Stefan was fighting for every day. Time was setting by hospital apparatus, silent working of hospital pumps giving our son medicines, another doctors stepping by...

We have been through a lot since then. Despite the disease, we are trying to live normal life, we're trying to show our son a beauty of these world, help him see things and support his imagination. However,  every time when I'm giving him pills, I remember that my son is not a healthy child and his safety is fragile. Despite the fact that he looks well now and you can't see it - his heart still doesn't work properly. Moreover the pulmonary hipertension destroys his lungs.

Nowadays the situation seems stable but when it starts to worsen immediately intervention will be necessary. The only solution is transplant of the lungs and the heart – in the same time. This kind of surgery is not achievable in Poland. We know the parents of Angels who didn't survive the time of waiting... We can't waste time! We cant lead to last resort.  We have been looking for help everywere: in Poland, in Europe... unluckily,  no one can give us comprehensive help we need.

Only the specialists from Boston give us hope, they provide that even this complicated disease can be treaten succesfully.  Unfortunaltelly for us, there is another trouble because price of the operation is horryfying. Health and normal life of our son is a cost of over 250 000 USD! It is amount that we cannot afford by ourselfs. On this amount depends our future. In this situation we have to ask for your help. Your support it's our only hope to defeat this horrible opponent who is trying to stop the beating of our son’s heart forever.

I am afraid of a day when my son condition will be worse. I'm scared that we won't be ready for this. I wish to jauntily plan our future. I wish to have certainty that I will see my son going to school, develop his passions. I dream of hearing his calm regular breath – not this same rapid breathe that reminds me that life of our son depends of how quickly the help will come.

Cyanosis of toes are hiding in the shoes, we are hearing his rapid breathe. Only relatives and the closes friends know how living with the sick child looks like. Only we – the parents – realize how it is to fall asleep with the thought that the future is one big unknown.