Our sons were diagnosed with a terminal genetic disorder❗️HELP❗️

February 21, 2023, our dream of becoming parents again came true - our twin sons Ignaś and Szymuś were born. They were both healthy and received an Apgar score of 10. After we returned home, we thought, from now on, we would all live happily ever after. Unfortunately, cruel fate decided otherwise. 

When our boys turned three months old, they had reached the developmental milestones of a one-month-old. We started searching for the reason for this abnormality. Their symptoms, like nystagmus, club foot, and delayed psychomotor development, kept us awake at night. 

Although the doctors said that all children tend to develop at a different pace, thanks to our determination and advice given by physical therapists, we found a doctor who didn't take our concerns for granted and referred our children for detailed testing and examination. At five months old, our sons underwent MRIs that detected brain lesions. Further genetic test results showed a horrifying diagnosis - Pelizaeus-Merzbacher disease, an incurable genetic disorder that leads to death.

It tore our hearts apart! How could that have happened to our babies?! Today, we can only count on the development of medical technology, and we do our best to guarantee our boys the best quality of life and provide them with the best tools for growth, like rehabilitation, cutting-edge medical equipment, and imported dietary supplements. We pay for most of the expenses and medical bills out-of-pocket. 

Recently, Ignacy and Szymon have been qualified by the Children's Hospital in Lublin for stem cell therapy - five injections, to be exact. If the treatment goes well, it must be repeated every nine months. Unfortunately, these procedures are too expensive for us, and we cannot afford them. We must ask you for support! Please help us fight for our children! 

The parents