DMD – this diagnosis is a sentence❗️We are fighting for a miracle for Tymek❗️

Our days are filled with fear. We are counting the days in the calendar and begging for our son to be with us as long as possible. His awareness of his condition is the most heart-breaking for us – he is not a little boy anymore. For this reason we are humbly begging you – please, help us fight for him!

We read fundraisers for several-years-old boys, who need the most expensive drug in the world, and our eyes fill with tears. At first, we were devastated that Tymek could not be saved. However, the qualification process is often changed. With the development of medicine, new possibilities appear. We regained hope...

Our son was diagnosed very early – he was six months old. We were in hospital due to bladder infection and were referred for genetic tests. When we received the results, we did not know what was ahead of us... We had never heard about this disease before. When my husband used Internet search engine to check the term DUCHENNE MUSCULAR DYSTROPHY our world fell apart...

Since that moment, our daily life has been a continuous fight to help Tymek maintain good physical condition as long as possible. The disease causes degradation of every muscle, including respiratory and cardiac ones. It is a miracle that he is 13 years old and his heart is still healthy! We have regular cardiologist appointments and rehabilitation several times a week. We are doing everything to hinder the progress of this ruthless disease.

There is a difficult moment ahead of us. We knew this was going to happen... Tymek was mobile up until now but he finds it more and more difficult to walk. He needs a wheelchair. He is unable to accept that. He knows he is ill but he is unable to accept this life sentence. It is difficult for us as well and for this reason, we are ready to move heaven and earth in order to help him. We are looking for available solutions and we believe that we can save our child.

However, the costs of treatment are enormous! We have to pay several million zlotys!  And time is not our ally. That is why each donation is an invaluable help for us during this difficult journey and we thank you from the bottom of our hearts!

Tymek’s Parents