USA for Antoś
The money box was created on the initiative of the Organizer who is responsible for its content.
Hello, my name is Antoś and I am very very sick. I have been diagnosed with SMA type I, which is the most deadly type of spinal muscular atrophy.
Due to the illness my muscles are slowly failing to work, I can’t move like other children, I can't turn to lie on my belly and I can’t crawl like babies my age. But this is not the worst part… the illness affects all muscles, including those allowing me to breathe or swallow. It is extremely difficult as my mum has to watch over me all the time to ensure I am not suffocating by removing the mucus from my throat as it impacts my breathing.
My parents have already saved me twice - only thanks to their fast reaction my breathing returned to normal. They are continuously scared: would they be able to save me one more time? would they even be able to save me next time? This is why I am asking all of you for help. My mom will tell you more about me and my condition.
SMA diagnosis sounds like a death sentence, but we can’t simply give up! I can’t watch my child losing the battle with the deadly illness! We need help now!
I still remember the day when the doctor told me that they suspect that Antoś may suffer from SMA. Until the final confirmation of the diagnosis, I was hoping that this is just one big misunderstanding. Unfortunately, those 3 letters (SMA) shook our family world in a way we could not prepare for.
Antoś’s case is really serious, his muscles seem to have been very weak from the beginning. I could see that compared to his older siblings he is not developing well, he could only really move one of his hands. I had a very bad feeling about it…
The first visit at the doctor’s brought even more anxiety, but we had to wait for the subsequent tests for a diagnosis. Finally I received a call with results, a confirmation of my deepest fears - my child has Spinal Muscular Atrophy type I.
To make things worse, in Antoś’s case the progression of the illness is very fast. He is tiny and helpless and the doctors are saying we need to be prepared for the worst. He can stop breathing anytime. Currently, the biggest risk is at night, but it is only a matter of time when his lungs will not be able to carry on anymore. His arms and legs are extremely weak, Antoś only really uses 1 hand at all. I am in despair… looking at my baby I feel completely powerless. Defeated. And this is just the beginning of the fight.
After the SMA diagnosis the time moved forward rapidly. We had to redesign our life and now it revolves around the illness - specialist medical equipment, medical centers, the best doctors which can give my son a fighting chance. The most difficult part is still ahead of us. To stop the progress of this ruthless disease we need the most expensive medicine in the world! Gene therapy needs to be administered as soon as possible, as it is the only chance for Antoś’s health. Gene therapy for SMA is not covered by medical insurance in Poland, so we have to find a way to raise 9.500.000 zł, which is 2.300.000 USD.
The amount needed is breathtaking, I can't really imagine such an amount of money, but I still need to raise it for my son. The medicine (you can read more about it here (opens a new tab)) will give my son a fighting chance at partial independence and undisturbed breathing. I am begging you to help us before the illness will take my son! I can’t do this without your help! My son still has a chance and I will do everything in my power to take it.
The fear is paralyzing, but I need to seek help for my son, he is only 9 months old and has been through so much already. I am afraid to look forward, but I can’t give up now, my son’s life is at stake.
SMA is taking my baby away from me, one little piece at a time and I need to somehow stop the impending disaster/tragedy. Unfortunately, there is nothing more I can do on my own, I am asking you to help us. Please, reaching out to the people of good will is the last chance for my son.
On average raising such a huge amount of money takes way over a year. We don’t have such time. Adaś will not have a year if we do not act.
He has been accepted for gene therapy outside of the normal procedure due to the severe condition (“You can’t wait!” the doctor told us)
He has 2 copies of the necessary gene now. One gene can produce 10-15% of the protein needed by his muscles to work… Simple math shows us that Antoś can produce only 30% of the needed protein. 70% is missing
He has continuous breathing issues, he is choking, as he is too weak to remove the mucus and had to be resuscitated twice already!!
He can’t eat normally, as due to muscle weakness the food goes up the nose.
He needs to lie down all the time, undergoing medical procedures to keep him alive, getting more tired and sad every day.
At this moment Antoś is a very special child, unfortunately, not in a good way - if the gene therapy was covered by medical insurance in Poland, my son would be the second child on the waiting list.
That means there is only 1 child in Poland in worse condition than Antoś, who meets the criteria for gene therapy.
If we do not act now, Antoś will die. And it will be a horrifying way to go.
Antoś’s mom
By supporting our fundraiser, you are directly supporting Antoś’s main fundraiser in Poland (link (opens a new tab)).
Who runs the fundraiser: this fundraiser is run by Siepomaga foundation, which is an official fundraiser operating in Poland and is registered officially in the national records of non-governmental organizations who can run such fundraisers. Therefore, by supporting this fundraiser, you can be sure that the money donated will be received by Antoś’s family. Siepomaga foundation always verifies the medical condition of people who benefit from the fundraisers, which means that the family has to provide full medical documentation. Once the money is received by the beneficiary, they have to provide all bills back to the Siepomaga foundation to document the spending.
Thank you for all help!
All funds accumulated in the money box are transferred
directly to the Beneficiary's account:
Pledge 1.5% of tax
Pledge 1.5% of tax
Hello, my name is Antoś and I am very very sick. I have been diagnosed with SMA type I, which is the most deadly type of spinal muscular atrophy.
Due to the illness my muscles are slowly failing to work, I can’t move like other children, I can't turn to lie on my belly and I can’t crawl like babies my age. But this is not the worst part… the illness affects all muscles, including those allowing me to breathe or swallow. It is extremely difficult as my mum has to watch over me all the time to ensure I am not suffocating by removing the mucus from my throat as it impacts my breathing.
My parents have already saved me twice - only thanks to their fast reaction my breathing returned to normal. They are continuously scared: would they be able to save me one more time? would they even be able to save me next time? This is why I am asking all of you for help. My mom will tell you more about me and my condition.
SMA diagnosis sounds like a death sentence, but we can’t simply give up! I can’t watch my child losing the battle with the deadly illness! We need help now!
I still remember the day when the doctor told me that they suspect that Antoś may suffer from SMA. Until the final confirmation of the diagnosis, I was hoping that this is just one big misunderstanding. Unfortunately, those 3 letters (SMA) shook our family world in a way we could not prepare for.
Antoś’s case is really serious, his muscles seem to have been very weak from the beginning. I could see that compared to his older siblings he is not developing well, he could only really move one of his hands. I had a very bad feeling about it…
The first visit at the doctor’s brought even more anxiety, but we had to wait for the subsequent tests for a diagnosis. Finally I received a call with results, a confirmation of my deepest fears - my child has Spinal Muscular Atrophy type I.
To make things worse, in Antoś’s case the progression of the illness is very fast. He is tiny and helpless and the doctors are saying we need to be prepared for the worst. He can stop breathing anytime. Currently, the biggest risk is at night, but it is only a matter of time when his lungs will not be able to carry on anymore. His arms and legs are extremely weak, Antoś only really uses 1 hand at all. I am in despair… looking at my baby I feel completely powerless. Defeated. And this is just the beginning of the fight.
After the SMA diagnosis the time moved forward rapidly. We had to redesign our life and now it revolves around the illness - specialist medical equipment, medical centers, the best doctors which can give my son a fighting chance. The most difficult part is still ahead of us. To stop the progress of this ruthless disease we need the most expensive medicine in the world! Gene therapy needs to be administered as soon as possible, as it is the only chance for Antoś’s health. Gene therapy for SMA is not covered by medical insurance in Poland, so we have to find a way to raise 9.500.000 zł, which is 2.300.000 USD.
The amount needed is breathtaking, I can't really imagine such an amount of money, but I still need to raise it for my son. The medicine (you can read more about it here (opens a new tab)) will give my son a fighting chance at partial independence and undisturbed breathing. I am begging you to help us before the illness will take my son! I can’t do this without your help! My son still has a chance and I will do everything in my power to take it.
The fear is paralyzing, but I need to seek help for my son, he is only 9 months old and has been through so much already. I am afraid to look forward, but I can’t give up now, my son’s life is at stake.
SMA is taking my baby away from me, one little piece at a time and I need to somehow stop the impending disaster/tragedy. Unfortunately, there is nothing more I can do on my own, I am asking you to help us. Please, reaching out to the people of good will is the last chance for my son.
On average raising such a huge amount of money takes way over a year. We don’t have such time. Adaś will not have a year if we do not act.
He has been accepted for gene therapy outside of the normal procedure due to the severe condition (“You can’t wait!” the doctor told us)
He has 2 copies of the necessary gene now. One gene can produce 10-15% of the protein needed by his muscles to work… Simple math shows us that Antoś can produce only 30% of the needed protein. 70% is missing
He has continuous breathing issues, he is choking, as he is too weak to remove the mucus and had to be resuscitated twice already!!
He can’t eat normally, as due to muscle weakness the food goes up the nose.
He needs to lie down all the time, undergoing medical procedures to keep him alive, getting more tired and sad every day.
At this moment Antoś is a very special child, unfortunately, not in a good way - if the gene therapy was covered by medical insurance in Poland, my son would be the second child on the waiting list.
That means there is only 1 child in Poland in worse condition than Antoś, who meets the criteria for gene therapy.
If we do not act now, Antoś will die. And it will be a horrifying way to go.
Antoś’s mom
By supporting our fundraiser, you are directly supporting Antoś’s main fundraiser in Poland (link (opens a new tab)).
Who runs the fundraiser: this fundraiser is run by Siepomaga foundation, which is an official fundraiser operating in Poland and is registered officially in the national records of non-governmental organizations who can run such fundraisers. Therefore, by supporting this fundraiser, you can be sure that the money donated will be received by Antoś’s family. Siepomaga foundation always verifies the medical condition of people who benefit from the fundraisers, which means that the family has to provide full medical documentation. Once the money is received by the beneficiary, they have to provide all bills back to the Siepomaga foundation to document the spending.
Thank you for all help!
Donations
It looks like there are no donations here yet. You can become the first donor!
Donate