We can save him from sorrow and silence... Sebastian can hear again!

Kids are pointing Sebastian out. None of them can imagine what he’s been through. Pain, hospital, fighting for life... but it’s still not the end. Only right ear is able to hear, but not properly. And the place of the left ear is empty. My sick boy needs a surgery. Without it he doesn’t have a chance to hear and grow up like a healthy child. Please, help me save Sebastian and protect him from further pain!

That’s my only child, awaited and beloved. We’ve tried so hard with my husband, I miscarried two times before... when I finally got pregnant I was the happiest woman in the world. After 20 weeks of happy pregnancy the doctor said our child has hydrocephalus, heart defect and no chances for a normal life.

When a child’s life is in danger, mother will cry a river of tears and will do everything’s necessary to help him. I realised it back then. I went to Warsaw to visit Romuald Dębski, amazing doctor who believed in our baby boy and fought with me for his life. I remember the labour day, this happiness that I will finally see my son and the fear of what we are going to face from now on.

Little Sebastian was born on October 24th, 2016. He was born with Goldenhar syndrome. He has hydrocephalus, heart defect, facial nerve palsy, facial dysmorphia and what’s more, lack of left earlobe.

It was a shock for us, but we loved our baby boy from the very beginning. Sebastian is the most beautiful baby for us. We knew we will do everything possible to help him. Love is the biggest power. When I became a mom I realised what it means to truly love and also what it means to be truly scared.

First weeks were the most difficult for Sebastian. He had a very important surgery which wasn’t as successful as we hoped and our little boy almost died. It was the hardest moment in our lives.

When Sebastian won his life battle, another fight started. A fight for how this life is going to look like. The biggest problem is the lack of left ear. The beautiful magic of sounds and music - he’s able to know it only partly. Sebastian hears with one ear only, it’s not only difficult for his growing but also for learning how to speak which is very important right now. He’s leaning towards the right side which causes deformity and without surgery it’s going to be worse.

There’s another thing that’s very difficult for me to speak about... Other children are laughing at Sebastian. He looks differently which makes him an easy target. Once a scared girl called him a monster. My heart breaks when I think about this.

That’s why I beg you for help. There’s a way for my baby to hear again and be healthy. A surgery that’s going to be performed in the USA by a specialist, doctor Youssef Tahiri. Thanks to this surgery Sebastian can have a new beautiful ear! He can go to school as a healthy little boy.

I wish we could do all of this in Poland but unfortunately it’s possible for children above 10 years old and it’s multistage. There’s also a lot of possibilities that something goes wrong. I cannot let this happen.

Recently Sebastian reacted to the lack of his left ear fully consciously. He touched his right ear, then the left side of his head and said sadly: Empty. I started crying so he was trying to comfort me, like he wanted to say: Don’t worry, everything’s going to be fine. I don’t want to cry anymore, I want to give him a chance to be healthy.

The surgery isn’t refundable and it’s extremely expensive. It’s the price we have to pay to save Sebastian from pain and silence. So please, help us. Think how important hearing and speaking is to you and please, give my little son a chance to experience it too.