Our little son is suffering from SMA ❗️ Please help!

Our son was born perfectly healthy. At 9 months old, he started walking and achieving developmental milestones. We had no idea that our world would soon fall apart, and that we would have to start a battle for Maksim’s health… 

All of a sudden, our son started tripping and falling down. We also noticed an irregular gait and weakening of his arms and legs. The doctors diagnosed him with varus foot deformity and referred us to the physiotherapist.

In January, our child’s condition worsened, so we decided to have him tested. No abnormalities were detected, though.

Only after numerous doctor’s appointments, we finally received the diagnosis, type 3 SMA, a rare mutation that is hard to detect. 

Due to the weight limit, Maksim cannot receive gene therapy in our country (he now weighs 14,5 kg). Thankfully, he’s been qualified for treatment in Dubai. It’s very expensive, though.

Our son is getting weaker day by day. He can barely walk up the stairs and has lost the ability to run or jump… We are worried about his present and future condition! 

Please, help us… We want to save our son, but we cannot afford the gene therapy! 

The parents