By królewna nie spędziła życia na wózku

We wish our little princess did not spend her life in the wheelchair.

Amelka is a girl with blonde curly hair and big blue Innocent eyes. You canot see any pain in her eyes, as well as the feeling of being hurt or the sickness she must live with. She is not aware of the fact that if we – her family – do not do anything, she will never be strong enough to lift her body up out of the wheelchair. She looks like a small angel. For me she is the flicker of life I will fight for with all possible power.

I was informed about the fact that I would deliver a handicappedbaby on the 29th week of pregnacy. The numer of illnesses that my baby was suffering from mentioned by the doctor came as a shock to me.

The prognosis was not too optimistic. I had to take steroids for Amelka’s lungs proper developement. When Amelka was born we found out what what we would have to face in the near future. When my little baby was born she was diagnosed with the following problems: spina bifida, hydrocephaly, dislocated hip joint, disforted foot and neurogenic bladder. I had hoped for a miracle before. While I was holding my child I knew that her body hadn’t undergone any miraculous cure. However, she stole my heart. I was given the miracle in the sense of my child’s life.

On the first day of life Amelka was operated on in order to close myelomeningocele. 38 days later Amelka was operated on the second time. Unfortunately, during thelond stay in hospital, Amelka got infected with a bacteria which caused meningitis. This complication might have caused Amelka’s vegetative state or even killed her.

She was half a year old when she showed to everyone that she ha dan enormous wish to fight. Unfortunately, her body lacks energy. From her waist down Amelka is paralised. She cannot stamp her  feet next to me when we go for a walk, every toy which is out of her reach is too far for my baby. For the time being, she admires the world from her pra mor from my hands when I carry her. It is hard to imagine how to explain to her that she will not run to her friends, that she will never be the same as they are.

I have been looking for help for my daughter and I have found an experimental therapy with stem cells. Amelka has already been treated with this therapy twice. She is able to lift her leg a little, which seemed impossible before.

Her legs, which stayed without motion, now seem to come back to living. This is a real miracle!

Amelka is 22 months old now and she has already experienced a few serious operations. The last operation which took place in November 2016, was extremely risky since it was based on the opening of the spinal cord and getting access to neurofibrils. The next operation is planned for the 9th of February. Amelka  is going to have the surgery on the spine to reduce scoliosis. These are very complicated surgeries which call for great knowledge and precision on the part of the doctors.

Amelka’s body reacted to stem cells induction very fast, although this is the beginning of the first phase. I got to know a 6-year-old girl whose nam eis Amelka as well. This girl after the cycle of stem cells inductions is able to walk alone with the help of the little walking frame. The continuation of the treatment is the chance for Amelka to stay much fitter and be able to feel her legs and for her neurogenic bladder to be heeled.

I wish my daughter not to get week. I wish she had the power to lift her body and give me a hug. I wish she was able to play alone or even make some steps. I will do everything to make Amelka’s life happy. Therefore, I need Your help to make my and my daughter’s dreams come true.