Help for Ania

She is unique!  And the same exceptionally cruelly experienced by fate... My daughter suffers from a very dangerous metabolic disease, hidden under the dangerous acronym AADC.  Currently, there are only two such children in Poland...

Fate has experienced us with this disease twice - our first daughter died a few years ago from AADC.  She was 13 months old...

Ania is our second child.  Today she is 10 years old.  She lives thanks to an early diagnosis.  Unfortunately, the disease prevents her from walking, sitting or talking.  Every day I tremble for her future ... I dream about what is obvious to other parents.  I dream so much that she will cope when I'm gone ...

AADC is based on the fact that the body does not produce dopamine or serotonin, which are very important neurotransmitters responsible for vital functions.  When they are missing in the body, development is impaired, there is decreased muscle tone, difficulty breathing, seizure-like attacks occur ...

On April 16, 2019, Ania underwent brain gene therapy.  Its effects are amazing!  The operation brought a significant improvement.  Ania works with her head, grabs the toy.  Before that, she often lay with her eyes half closed.  Now he reacts lively and is happy.  Such progress is a milestone in our fight ... We still have a long and bumpy road ahead.  However, Ania's will to fight allows me to believe that it will still be beautiful!

But gene therapy was only the beginning of our fight.  Now the most important thing is systematic and intensive rehabilitation.  However, such sessions cost a fortune ... I know that we can’t miss such a chance ... I also know that I will not be able to help my child by myself.

Please don't be indifferent, help us...