Daughter has died, son is fighting SMA and dad is fighting for Ukraine…please help!
Genetic therapy in Spain
Ends on: 31 January 2023
Our little son is the essence of our lives. He is our ray of sunshine, which appeared in our lives during the darkest of times…He was born when our world collapsed after the death of our older daughter…It was Dima who made us believe again that life is worth living! But soon we have found out about the terrible diagnosis, SMA…This disease is taking away the life of our child, bit by bit. We are doing everything in our power to give him a chance. We are hoping for genetic therapy, but the time, the time of our son, is slipping away! We beg you for help!
The fate turned out to be brutal, sentencing our son Dima to a terrible disease…Today we ask everyone out of the goodness of their heart to help and support our son, because every single day is a struggle for his health and for his life.
The diagnosis came when Dima was 1,5 years old. SMA type II, spinal muscular atrophy. A life sentence… This disease is incurable, it kills the muscles, it takes away body’s ability to move, to stand and if left untreated it takes away your life. We are fighting every day for two years to slow down its progression. We are making sure we are doing everything we possibly can so that this disease doesn’t win.
Now we have new hope, but in fact it’s more praying for a miracle… Dima qualifies for genetic therapy in Spain! There they accept children under 21 kg, but Dima weights already 18kg! This means we have unbelievably little time left to gather an enormous sum of money for the treatment. But as long as there is a chance to stop SMA, we would never forgive ourselves if we didn’t try everything in our power!
For the past 2 years we have ran out of all our options and Dima will be needing help for the rest of his life. It depends only on us if it will be a long and a happy one…It’s horrible to realise that the health and life of your child depend on asking strangers for help. We have no other choice because we will not make it on our own.
We ask for help, because only with you we can fight this terminal disease. The pain after the loss of our daughter will never be gone, but the fight for our son gives us strength.
We will move heaven and earth to help Dima, because he is our whole world! We are fighting even tough SMA is taking more and more of Dima each day. We saw how it took Spartak’s life - a friend of Dima and a son of our friends. That’s why we will do everything in our power so that our son gets his chance to live.