Let's save Karina's life!

"Ms. Karina, the matter is serious. You are dying. . . " - after years of searching for a diagnosis I heard these words from a doctor. I wasn't expecting them, because who at 29 is ready to die? Today, I'm really asking for your help. There is one last treatment that can still help me. . . .

Not every disease is visible from the outside. Some kill from the inside out. They wear out our bodies day after day. I've been sick for a few years now and it only gets worse every year. Trying to diagnose why I am sick has been going on since 2014. Until the doctors said directly: Karina, this is a very serious matter, you are dying. . .

I am admittedly a very strong and positive person, but such news can break anyone. . .

I struggle with an autoimmune disease. Additionally, I was diagnosed with a rare, severe genetic disorder - point mutations in 8 genes and abnormal, excessive activation of the complement system (immune system). All this has left my body under attack for several years and unable to defend itself against the slow destruction of vital organs.

I develop concomitant diseases such as epileptic seizures and serious, dangerous and pathological changes such as swelling of the left cerebral hemisphere, thickening of the dura mater, recurrent swelling of the dura mater and the superior temporal lamina of the eye. Local swelling, numbness of the limbs, paresis of the arms and legs, and piercing headaches also occur. I also struggle with blindness in my left eye and vision loss in my right eye. If the disease is not stopped quickly, I am in danger of losing my sight completely and irreversibly!

My disease is slowly finishing and destroying my whole body. What she has done to me so far, I described above. It can be compared to a ticking bomb. You never know when it's going to hit, what it's going to hit, and how hard it's going to hit. . .

I can't live a fully normal life. Even though you can't see anything of me, I'm dying inside!

The only way to save and maintain my life is to inhibit the complement system, which is a very expensive drug that is available and approved for treatment in Poland, but unfortunately is not refunded. The cost of buying this medicine is huge! The price of one vial is nearly 20 thousand zlotych, and there are dozens of such ampoules to be taken during the whole treatment.

The initial and maintenance treatment planned by the doctors for the first 3 months amounts to over PLN 440 thousand.

It's my only chance! A chance to get back to normal life and work. A chance to start a family, plan for children. A chance to return to normalcy. . .

The medicine I need may save my life in the first place, but it may also make it possible for me to live each day with dignity. So that I don't have to worry about what will happen next, so that I don't have to watch the pain and suffering of my family and those close to me. . . .

I don't know how much time I have left, but I know one thing for sure! Therapy with this drug has very good results and can mute the disease for years and may even make it never return again. I would love that.

Unfortunately, we live in a reality and a country where modern life-saving drugs are not reimbursed! Despite everything, I try not to break down. I was an honorary blood donor for many years, helping the weak as much as I could. And today I stand before you alone, asking for your support. I don't want to die. . . I believe that there are people with good and noble hearts who will help me. Please. . .

Karina