Fundraiser finished
Lucjan Grzesik - main photo

Help for Lucek!

Fundraiser goal: Leg surgery

Lucjan Grzesik, 8 years old
Stargard, zachodniopomorskie
Wrodzony staw rzekomy kości piszczelowej
Starts on: 8 August 2019
Ends on: 8 January 2020
PLN 143,658(102.6%)
Donated by 2381 people

Pledge 1.5% of tax

KRS0000396361
Purpose of 1.5% of tax0001792 Lucjan

Fundraiser goal: Leg surgery

Lucjan Grzesik, 8 years old
Stargard, zachodniopomorskie
Wrodzony staw rzekomy kości piszczelowej
Starts on: 8 August 2019
Ends on: 8 January 2020

Fundraiser result

Niestety była to dla nas trudna operacja. Po pierwsze dlatego, że byliśmy rozdzieleni jako rodzince i nie mogliśmy się wzajemnie wspierać. Po drugie dlatego, że nasz synek jest świadomy tego co się dzieje i wie, że później będzie bolało. I niestety tak było. Operacja trwała dłużej niż była zakładana i jej poziom skomplikowania w trakcie się zmienił. Lekarze usunęli stare zespolenie kości, przy czym się bardzo natrudzili, bo mocno przywarło do kości.

Lucjan Grzesik

Pręty były wybijane przez piętę specjalnym młotkiem - dla rodzica taki opis przebiegu operacji był straszny. Po 6 godzinach na sali operacyjnej w końcu mogłam zobaczyć swojego synka. Po przebudzeniu był płacz, ogromny płacz, że boli i że chce do mamy. Niestety dopiero na następny dzień był odłączony od znieczulenia w kręgosłup. Doszły nowe blizny i ból. Do domu zostaliśmy wypisani na następny dzień. Rekonwalescencja Lucusia trwała dość długo. Synek bardzo się bał o swoją nogę i najprostsze czynności wywoływały płacz. Dopiero po 3 tygodniach odważył się stanąć na nogi, a po 4 tygodniach zaczął się poruszać.

Wcześniej lekarze zapewniali nas, że następna operacja odbędzie się za kilka lat w zależności od tempa wzrostu Lucjana. Teraz wiemy, że trzeba naprawić staw skokowy i kolano, a po tym wszystkim to samo co w październiku. I tak do czasu osiągnięcia pełnego wzrostu. Co będzie dalej? Nie znamy dorosłych ludzi leczonych tych metodą, ale żyjemy nadzieją, że będą to tylko kosmetyczne zabiegi.

Fundraiser description

Lucek is only two years old, and he has several major leg operations behind him. Thanks to this, the amputation nightmare is forgotten. Unfortunately, this is not the end of our path to Luck's fitness. The son grows, he must have the telescopic rod replaced, which pulls out as the leg grows. Another operation and uncertainty are ahead of us, because we have to collect huge money again. As a mother, I am asking you for all my heart. We can't lose what we've got!

Lucjan Grzesik

After Luck's birth, I noticed that my son was rolling one leg under him. Mandatory hip tests in the second month of life and reassuring words from an orthopedist - there is no reason to worry, it will straighten itself. All in all Lucuś moved his leg, maybe I was really oversensitive? And then there was a swelling, a lump.

X-rays showed that the bone was broken. He hasn't fallen anywhere, so how can the bone be broken? She broke herself? - this question seemed absurd, but as it later turned out, this is the case in Luck's disease - the bone breaks itself and cannot grow.

Lucek has a congenital pseudoarthrosis. It's a prenatal disease. The bone breaks and a false joint appears here. In Poland, three children are born annually with such a defect. Subsequent fractures lead to abnormal development of the leg, making healthy grow faster and the one that breaks constantly - slower. When the difference between the legs from a few centimeters increases to a dozen or so, the child stops walking...

Lucjan Grzesik

After several visits to small leg specialists in Poland, we lost hope that anyone would help our child. We were sent from office to office, doctors spread their hands because they could not cure such a case. We appreciated honesty, not everyone has to be familiar with everything, but we were left alone. We were hoping that someone would say: "we can't help but there is someone abroad who can, try it." Such words have never been said, but we found this "someone" ourselves. We sent the son's medical records to Dr. Paley to the USA. Along with the qualification I received a huge cost estimate.

Thousands of good people stood on our way, thanks to whom we went for surgery. Before I gave my son to the operating theater, I held him in my arms and died of fear. I was afraid of pain after the surgery, but I also knew that we had no other choice, that it was the only way for Lucek to be healthy. I don't regret it today - the surgery was successful. When he started walking after a few weeks, I cried with happiness.

Lucjan Grzesik

In Lucek's leg there are rods that protect the bone from fracture and are support for it. This most important rod grows with Luck - it is telescopic and extends by an appropriate increase. Unfortunately, its scope ends at some point and must be replaced with a new one. This will be our son's next surgery. Unfortunately, this operation costs money and it is still unattainable for us.

Dr. Paley promised us that Lucek would walk 100%. He kept his word and today our son is running. However, we must return to the clinic so as not to lose what we have managed to work out. In order not to lose Lucek's health ...

Please, be with us, help us return to the place where our son was found to be rescued...

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