There is an ongoing fight with a terminal disease! Help us save Maksio!

DMD is a terminal disease that attacked our little son... A couple of years ago, this disease was like a sentence that could not be appealed against. Now, there is hope and Maksio can be saved. We have to do everything to raise this tremendously high amount that is necessary to cover gene therapy. We are begging for help. The life and functioning of our child has the value of 16 million PLN!

When I heard the diagnosis, I sank into despair. I cried through many hours, days, nights as I could not accept this horrible sentence. The disease was diagnosed at a fairly early stage –the routine tests conducted when Maksio was born indicated a muscle disorder.

The genetic tests that were done immediately, only confirmed the diagnosis… Duchenne muscular dystrophy – a terminal disease that wanted to take away the life of our son. We were devastated and did not know what to do or where to look for help. 

We started rehabilitation at once, in order to hinder what turned out to be inevitable...This disease leads to irreversible loss of muscles responsible for movement, heart function, breathing...It leads to premature and painful death. It was like a nightmare for us.

However, we knew that we could not idly wait for the worst. We had to act. 

Our son is under care of many specialists who monitor his health condition. We heard about gene therapy long ago but our son could not benefit from it at his age...Now, there is hope and a chance to save him!

It turned out that gene therapy may be administered to the children who are above the age limit. But there is one condition: Maksiu has to move on his own! We have to do everything, to keep him mobile as long as possible! 

Currently our son walks on his own, he attends school but the disease is clearly visible. Maksiu functions differently than his peers although he is trying his best to change that.

He loves animals, dogs, cats and is passionate about cars. We want him to have the same chances as other children. We want to watch his development, education, new relationships and how he pursues his hobbies… We want him to be happy and for his life to last as long as possible!

The amount we have to raise is exorbitant. We have been covering the costs that come with the disease from our own pocket so far. Unfortunately, the cost of gene therapy is too high for us… We cannot break down, we have to knock at every door in hope that there is help behind some of them...Maybe you are our Guardian Angel?

Maksio’s Parents