Her life is consumed by the fire of disease! For Amelka, the drug costs a fortune - the race against SMA❗️ is on

It all came as a shock and we still can’t quite believe, that this is really happening to us. Amelia was born last year in June and already back then the doctors noticed that our daughter suffers from a small anatomical asymmetry, so we consulted and remained under the care of a neurological clin...