Oliwierek ♥️

Description of the collection

VERY URGENT! My son Oliwier has been diagnosed with SMA1, a fatal disease that weakens his muscles step by step, leading to the worst. I am begging for a rescue! Help me to snatch my child from the clutches of death!

 

Here is our story:

 

Oliwier was born on 5 January 2022. We were so happy when we were able to touch his hands for the first time, to look into his tiny eyes, to hug him... He was a long time coming for his parents and older brothers. His development went by the book. Nobody expected that in a few weeks we would come face to face with death....

 

After 2 months, the son lost the ability to lift his legs and his hands became significantly weaker. We started rehabilitation, but it had no effect. Many doctors said that Oliwier still had time, that he was so tiny... But my heart told me that we had to keep looking!

 

Oliwier Koman

 

It wasn't until the fourth neurologist referred us to the hospital for tests with a suspicion of SMA. Until the end, we could not believe that our son could have the gene responsible for such a cruel disease in him. 

 

The test results came on the day Olivier turned six months old. Instead of celebrating, we cried over a piece of paper that had a death sentence on it. I hugged Oliver with all my strength, repeating how much I loved him... On the other hand, I felt terror, powerlessness and incomprehension.

 

Without treatment, children with SMA simply die. Oliver's condition is getting worse and worse. Every hospital stay is a mortal danger for a child with SMA. Behind him was his first infection, which ended with huge breathing problems. Due to swallowing and expectoration problems, the doctors had to insert a probe to avoid the worst. 

 

We had other plans and dreams... A holiday together, a first birthday party, time spent together. There was a little room waiting for Oliver to take his first step. Everything is gone. The only thing that matters now is this collection, thanks to which we will be able to rescue my little son from the clutches of death. We must act as soon as possible!

 

Oliwier Koman

 

 

If he had been born two months later, he would have joined the SMA screening for newborns in our province. However, fate wanted otherwise. He has chosen a longer and more dangerous path of treatment for us. That is why we need your help so much. Support that will allow Oliwier to live a normal life, have a happy childhood with his brothers and a safe future. 

 

Olivier needs the most expensive drug - gene therapy. It is a fight to the death. Time is of the essence here! Please, don't be indifferent and give a chance!

 

Mum with her loved ones

Oliwier Koman

 

➤ You can also follow Oliwiers struggle on Facebook and Instagram

 

➤ Bidding - Oliwier vs SMA

 

Oliwier Koman

 

MEDIA ABOUT OLIWIER

 

➤ wadowieceonline.pl - Little Oliwier from Wadowice is fighting SMA1. He needs 10 million zlotys, anyone can help

 

➤ mamnewsa.pl - Dramatic appeal for help for little Oliwier