Cały świat dla Adasia

Adaś Orlik is a 3-year-old boy from Morzyczyn, Poland. He is a long-awaited and beloved child, but unfortunately, he has been diagnosed with a genetic disease called Duchenne muscular dystrophy 

Duchenne muscular dystrophy (DMD) is a genetic disorder characterized by progressive muscle degeneration and weakness.

Muscle weakness is the primary symptom of Duchenne muscular dystrophy (DMD). It can begin as early as age 2 or 3, initially affecting the proximal muscles (those close to the center of the body), and later progressing to the distal muscles of the limbs (those further from the body, such as in the hands and feet). Affected children may have difficulty jumping, running, and walking. As the disease advances, the heart and respiratory muscles are also affected. Patients eventually become wheelchair-bound, require respiratory support, and are fed through a feeding tube.

The average life expectancy is only around 20 years.

Adaś's greatest hope is a new gene therapy called Elevidys.

Elevidys is a promising treatment that has proven to be the most effective among young patients like Adaś. There is even a chance it could stop the progression of Duchenne muscular dystrophy (DMD)! That would give Adaś a chance to live a normal life.

From a medical perspective, Adaś should receive Elevidys as soon as possible. However, the cost of this treatment is incredibly high. Elevidys is currently the most expensive medicine in the world — it costs over $3,000,000 USD.

For one person, this amount is impossible to raise alone.

But if one million people donated just $3, Adaś could receive the treatment even today.

Please, donate if you can — and if you can't, share Adaś’s story. 🙏

Thank you for your support.