Skarbonka zakończona
Skarbonka

SMA and a dramatic race against time - Zosia (Poland)

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Organizator:Magdalena Chorazy

Skarbonka została założona z inicjatywy organizatora, który odpowiada za jej treść.

The most difficult time for the family has begun! Zosia was only a dozen days old when the phone from the hospital rang... The message that was delivered turned everything upside down! SMA - Spinal Muscle Atrophy! Further medical examination confirmed a brutal diagnosis! The only hope for Zosia is gene therapy. Unfortunately, the world's most expensive drug costs a fortune and is not reimbursed in Poland. It costs over 2.282.600 USD ! 

There are 5-10 weeks left to collect this amount, before Zosia grew to a weight that would preclude her from starting the therapy.

The Family will never be able to raise such a huge amount of money on their own. They need thousands of people with big hearts who will be moved by the fate of their little girl! 

581 złWsparło 9 osób

Wszystkie środki zebrane na skarbonce trafiły
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Przekaż 1,5% podatku

Numer KRS0000396361
Cel szczegółowy 1,5%0207274 Zofia

The most difficult time for the family has begun! Zosia was only a dozen days old when the phone from the hospital rang... The message that was delivered turned everything upside down! SMA - Spinal Muscle Atrophy! Further medical examination confirmed a brutal diagnosis! The only hope for Zosia is gene therapy. Unfortunately, the world's most expensive drug costs a fortune and is not reimbursed in Poland. It costs over 2.282.600 USD ! 

There are 5-10 weeks left to collect this amount, before Zosia grew to a weight that would preclude her from starting the therapy.

The Family will never be able to raise such a huge amount of money on their own. They need thousands of people with big hearts who will be moved by the fate of their little girl! 

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