Your browser is out-of-date and some website features may not work properly.

We recommend updating your browser to the latest version.

On siepomaga.pl we use cookies and similar technologies (own and from third parties) for the purpose of, among others, the website proper performance, traffic analysis, matching fundraisers, or the Foundation website according to your preferences. Read more Detailed rules for the use of cookies and their types are described in our Privacy Policy .

You can define the preferences for storing and accessing cookies in your web browser settings at any time.

If you continue to use the siepomaga.pl portal (e.g. scroll the portal page, close messages, click on the elements located outside messages) without changing privacy-related browser settings, you automatically give us the consent to letting us and cooperating entities use cookies and similar technologies. You can withdraw your consent at any time by changing your browser settings.

Choroba niszczy dzieciństwo, odbiera nadzieję... Amelka potrzebuje naszego wsparcia!

Amelia Czernecka

Choroba niszczy dzieciństwo, odbiera nadzieję... Amelka potrzebuje naszego wsparcia!

Donate via text

to 75365
Text 0128074
6,15 zł (including VAT)
Donate via text now
Fundraiser goal:

Terapia immunoglobulinami zakup leków, suplementów, wizyty lekarskie, dojazdy

Fundraiser organizer: Fundacja Siepomaga
Amelia Czernecka, 11 years old
Tarnobrzeg, podkarpackie
Autoimmunologiczne zapalenie mózgu - zespół PANDAS
Starts on: 07 May 2021
Ends on: 07 June 2023

Fundraiser description

When you watch your beautiful, healthy child full of joy and happily leaning and playing every day, nothing else matters. And suddenly, slowly, you start noticing that something is changing. A new grimace appears on the face, eyes blink too often, joy is replaced by anger and laughter by unjustified scream. This is our story. Our daughter Amelia is 10 years old. She was a happy and healthy girl and suddenly something has begun to change, almost overnight in an incomprehensible direction and at an alarming pace. Four months have passed since Amelia felt unwell. After many visits to specialists and a number of expensive diagnostic tests, we received a diagnosis - autoimmune encephalitis, the PANDAS syndrome. Like any autoimmune disease - in this as well the body, instead of fighting pathogens, also fights its own, healthy cells. Symptoms in children with PANDAS are restlessness, personality changes, tics, aggression, anxiety, seizures similar to epilepsy, decreased attention span. We observe many of them at home every day. Constant searches, medical visits, medications, supplements and therapies with specialists that give us hope to alleviate the symptoms of the disease are very expensive. There is a treatment - an intravenous immunoglobulin infusion. unfortunately in Poland, where we now live, the medication is not easily accessible and only one public and one private hospital offer it. Yet, we were not qualified to obtain a public care for that matter. Privately we need 5 doses of the medication and it is a cost of 150k PLN (Polish Złotych) 30k GBP / 27k$. Because we are not able to bear the cost of treatment ourselves we hereby humbly call for your kind help and support. It is Amelias chance for a full recovery, but without that drug she will only progress with the illness. This disease takes Amelia's childhood away and lives us - her parents restless. Amelia has a baby brother who also requires our attention and misses playing with his big sister. Please help in the fight for Amelia's health.

Donate via text

to 75365
Text 0128074
6,15 zł (including VAT)
Donate via text now

Help me promote this fundraiser

Baner na stronę

Follow important fundraisers