Fundraiser finished
Mateusz i Jola Gruszczyk - main photo

Mateusz potrzebuje kolejnej operacji❗️ Twoja pomoc może zmienić jego przyszłość na lepsze!

Fundraiser goal: Operacja w Paley Institute, leczenie i rehabilitacja, dojazd i pobyt

Fundraiser organizer:
Mateusz i Jola Gruszczyk, 22 years old
Bielsko biała, śląskie
Mateusz: Zespół Ehlersa Danlosa, Zespół Marfan, Zespół Aspergera, padaczka lekooporna, choroba Otto-Chrobaka, ADHD, miopatia dystalna; Jolanta: miopatia dystalna, zespół Ehlersa-Danlosa
Starts on: 27 February 2024
Ends on: 25 July 2024
PLN 162,513(100.08%)
Donated by 3612 people

Pledge 1.5% of tax

KRS0000396361
Purpose of 1.5% of tax0122606 Mateusz i Jola

Fundraiser goal: Operacja w Paley Institute, leczenie i rehabilitacja, dojazd i pobyt

Fundraiser organizer:
Mateusz i Jola Gruszczyk, 22 years old
Bielsko biała, śląskie
Mateusz: Zespół Ehlersa Danlosa, Zespół Marfan, Zespół Aspergera, padaczka lekooporna, choroba Otto-Chrobaka, ADHD, miopatia dystalna; Jolanta: miopatia dystalna, zespół Ehlersa-Danlosa
Starts on: 27 February 2024
Ends on: 25 July 2024

Fundraiser result

Syn 9 sierpnia przeszedł już trzecią operację, która przebiegła zgodnie z planem. Do końca września Mateusz będzie przebywał w Warszawie, gdzie intensywnie się rehabilituje. Bez Waszej pomocy nie byłoby to możliwe. Brakuje mi słów, które wyrażą wdzięczność za każdy gest dobra okazany mojemu synowi!

Podczas konsultacji przedoperacyjnych zdiagnozowano u niego protruzje stawów biodrowych i w przyszłości czeka go wszczepienie endoprotez.

Stwierdzono u syna też deformację kręgosłupa, które jeśli będą się pogłębiać, konieczna okaże się interwencja chirurgiczna.

Mateusz Gruszczyk

Każda operacja Mateusza jest obarczona dużym ryzykiem. Jedynym sposobem odwleczenia jej w czasie jest specjalistyczna rehabilitacja kontynuowana w Paley European Institute. Każda przerwa w rehabilitacji powoduje u syna duży regres oraz zanik mięśni.

Jeszcze raz z całego serca dziękuję za zaangażowanie, jakie okazaliście w trakcie  zbiórki dla mojego syna. Wasza hojność i dobre słowo przerosły moje najśmielsze oczekiwania. Pomoc to nie tylko wsparcie finansowe, ale i ogromna dawka nadziei oraz wiary, że nie jesteśmy sami w tej walce. 

Mama Mateusza

Fundraiser description

It is not easy to be a single mum of a disabled child. Yet what is even more difficult is to try to understand why the most innocent – the helpless children – are forced to suffer from severe conditions. My strongest desire has always been to protect my son from pain. However, it is hard to beat an unfortunate gene combination that is responsible for Mateusz’s suffering: recurring pain and injuries and the resulting fear of having to go through another day. The only chance to reduce my son’s suffering is an extremely costly surgery (not covered by the National Health Service in Poland), followed by physical therapy.

The number of conditions Mateusz suffers from is overwhelming: drug-resistant epilepsy, Ehlers-Danlos syndrome, Marfan syndrome, muscular dystrophy, muscle contractures, floppy muscles, asthma, a number of allergies, depression and more. Everyday life has been increasingly gruelling for both of us.

Ehlers-Danlos Syndrome is a rare, progressive disorder that put my son in a wheelchair 6 years ago. The condition has been affecting his joints, resulting in intense pain, and has effectively made it impossible for Mateusz to walk.

My son dreams of running around and playing football like a regular boy. I often see him watch his friends with envy and tears as they run and jump effortlessly. What Mateusz has lost is an ordinary childhood. I cannot turn back the clock but I do want to fight for his future.
My son has been qualified for a surgery in Paley European Institute – a treatment that would make it possible for him to walk again. This is a chance for my son to live a happy and fulfilling life – however, while the treatment is covered by health insurance in EU countries such as the UK, National Health Service in Poland does not pay for it. I need to collect the money on my own; this is why I am asking for your help. The surgery is on 13th Feb 2022 and the clock is ticking! An advance payment of 46 000 zloty must be made as soon as possible. Please, do not look away!

It is not easy to be a single mum of a disabled child. Yet what is even more difficult is to try to understand why the most innocent – the helpless children – are forced to suffer from severe conditions. My strongest desire has always been to protect my son from pain. However, it is hard to beat an unfortunate gene combination that is responsible for Mateusz’s suffering: recurring pain and injuries and the resulting fear of having to go through another day. The only chance to reduce my son’s suffering is an extremely costly surgery (not covered by the National Health Service in Poland), followed by physical therapy.
The number of conditions Mateusz suffers from is overwhelming: drug-resistant epilepsy, Ehlers-Danlos syndrome, Marfan syndrome, muscular dystrophy, muscle contractures, floppy muscles, asthma, a number of allergies, depression and more. Everyday life has been increasingly gruelling for both of us.

Ehlers-Danlos Syndrome is a rare, progressive disorder that put my son in a wheelchair 6 years ago. The condition has been affecting his joints, resulting in intense pain, and has effectively made it impossible for Mateusz to walk.

My son dreams of running around and playing football like a regular boy. I often see him watch his friends with envy and tears as they run and jump effortlessly. What Mateusz has lost is an ordinary childhood. I cannot turn back the clock but I do want to fight for his future.

My son has been qualified for a surgery in Paley European Institute – a treatment that would make it possible for him to walk again. This is a chance for my son to live a happy and fulfilling life – however, while the treatment is covered by health insurance in EU countries such as the UK, National Health Service in Poland does not pay for it. I need to collect the money on my own; this is why I am asking for your help. The surgery is on 13th Feb 2022 and the clock is ticking! An advance payment of 46 000 zloty must be made as soon as possible. Please, do not look away!

It is not easy to be a single mum of a disabled child. Yet what is even more difficult is to try to understand why the most innocent – the helpless children – are forced to suffer from severe conditions. My strongest desire has always been to protect my son from pain. However, it is hard to beat an unfortunate gene combination that is responsible for Mateusz’s suffering: recurring pain and injuries and the resulting fear of having to go through another day.

The only chance to reduce my son’s suffering is an extremely costly surgery (not covered by the National Health Service in Poland), followed by physical therapy.
The number of conditions Mateusz suffers from is overwhelming: drug-resistant epilepsy, Ehlers-Danlos syndrome, Marfan syndrome, muscular dystrophy, muscle contractures, floppy muscles, asthma, a number of allergies, depression and more. Everyday life has been increasingly gruelling for both of us.

Ehlers-Danlos Syndrome is a rare, progressive disorder that put my son in a wheelchair 6 years ago. The condition has been affecting his joints, resulting in intense pain, and has effectively made it impossible for Mateusz to walk.

My son dreams of running around and playing football like a regular boy. I often see him watch his friends with envy and tears as they run and jump effortlessly. What Mateusz has lost is an ordinary childhood. I cannot turn back the clock but I do want to fight for his future.

My son has been qualified for a surgery in Paley European Institute – a treatment that would make it possible for him to walk again. This is a chance for my son to live a happy and fulfilling life – however, while the treatment is covered by health insurance in EU countries such as the UK, National Health Service in Poland does not pay for it. I need to collect the money on my own; this is why I am asking for your help. The surgery is on 13th Feb 2022 and the clock is ticking! An advance payment of 46 000 zloty must be made as soon as possible. Please, do not look away!

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    PLN 30
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    PLN 500

    not asking for your forgiveness. just. idk. just think of this as me trying to ease my mind [it wont work]. i hope things go well for you ;;; [im sorry]

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    PLN 1,000

    my heart is racing like crazy and im shaking rn. im just scared about doing this. i still feel v guilty about things so this feels like the least i could do

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    PLN 5
  • Dominika i T.
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    PLN 7

    Donation made via money box Biegniemy po finał

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    PLN 50

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