Help for our daughter Maja

It wasn't supposed to be like this! When I found out I was pregnant, I didn't even think for a moment that something might be wrong. From the very beginning, I had good thoughts and faith that our child would come into the world safe and sound.... Unfortunately, life can be perverse...

 Our daughter has been struggling with numerous adversities since birth. In the first days of her life, Majka was diagnosed with respiratory failure, congenital pneumonia, birth asphyxia, brain bleeding (caused by postpartum trauma), postpartum spleen trauma, unspecified brain damage... The list of diagnoses we heard seemed endless, and as it turned out soon - it wasn't over yet!

In the following weeks, my daughter was diagnosed with recurrent pneumonia, epilepsy and suspicion of congenital cytomegalovirus...

 We were terrified!

 Currently, Maja is 16 months old, but physically she is still at the level of a few-month-old child. She turns from back to tummy with great effort. She can't sit up on her own, can't catch toys...

Recently, it turned out that the pneumonia, that my daughter had been struggling with since birth, was due to swallowing difficulties. Fortunately, these infections stopped after surgical gastrostomy and fundoplication. Now Majka is enterally fed.

 From birth, a genetic disease was also suspected in our daughter, unfortunately, numerous diseases significantly slowed down the diagnosis in this direction ... We are still at the stage of diagnosing the disease. This, however, requires further exhaustive tests...

 To make matters worse, Maja was recently diagnosed with a rare disease - hyperinsulinemic hypoglycemia. We are slowly managing to regulate the sugar level with medicines imported from abroad, unfortunately they are not reimbursed, just like the necessary glucometer strips and the necessary Dexcom device that warns us about sugar drops...

 In her short life, Maja has suffered more than many adults: 10 pneumonias, 3 stays in the intensive care unit, a total of 21 stays in various wards, computed tomography of the head and belly, 17 x-rays, magnetic resonance imaging, numerous ultrasounds and blood tests. ...

 We are comforted by the fact that despite numerous turbulences and health problems, our daughter is a happy, always smiling child. She very rarely cries, and reacts to her older brother with a squeal full of joy. She bravely endures check ups and smiles at the nurses during blood tests...

 Unfortunately, today we know that we still have an extremely long and extremely expensive road to health ahead of us... Further treatment, exhaustive list of tests and intensive physical therapy.

 Our expenses are increasing every day. Maja requires regular physical therapy, which unfortunately is very expensive. In addition, we have to perform a number of expensive tests (including a WES test) in order to detect a possible genetic disease.

 All this goes far beyond our financial capabilities. So we are forced to ask people of good will for help for our beloved daughter... This is the only chance for Maja to have a happy and normal life.

 Please don't leave us alone!