Pomagamy Mariannie/Helping Marianna fighting SMA
Skarbonka została założona z inicjatywy organizatora, który odpowiada za jej treść.
Dear Freinds,
You have helped few children already and here is another charity to help a little girl called Marianna, She is 2-years old and suffers from SMA, Spinal Muscular Atrophy type 2. As you might know the disease is deadly cruel and every day takes a piece of this little girl away, her muscles deteriorate instead of developing,
Her parents moved form Ukraine to Poland to get a drug slowing down this deadly desease ( not available in their own country), however to stop the deaseas we need the USA drug (zolgensma) which is very exepnsive and not refundable in Poland. therfore, many charIties have been raise to get the 9.000000 PLN- the cost of the drug. So far there is only 217.000 PLN
We do not have time as the therapy to give to Marainna is given only if she does not cross 13.5 kg, Marianna is now 13.3 kg- not much time left ....
Why is the drug so expensive:
https://www.drugs.com/cdi/zolgensma.html
Please share it with your friends, perhaps we can still make it together and save this child from lifetime suffering.
Link to the main chairty page see total of funds raised so far: https://www.siepomaga.pl/en/marianna-sma
6 PLN = 2,23 EUR
10 PLN = 4,46 EUR
50 PLN = 11,15 EUR
Wszystkie środki zebrane na skarbonce trafiają
bezpośrednio na subkonto Podopiecznej:
Przekaż 1,5% podatku
Przekaż 1,5% podatku
Dear Freinds,
You have helped few children already and here is another charity to help a little girl called Marianna, She is 2-years old and suffers from SMA, Spinal Muscular Atrophy type 2. As you might know the disease is deadly cruel and every day takes a piece of this little girl away, her muscles deteriorate instead of developing,
Her parents moved form Ukraine to Poland to get a drug slowing down this deadly desease ( not available in their own country), however to stop the deaseas we need the USA drug (zolgensma) which is very exepnsive and not refundable in Poland. therfore, many charIties have been raise to get the 9.000000 PLN- the cost of the drug. So far there is only 217.000 PLN
We do not have time as the therapy to give to Marainna is given only if she does not cross 13.5 kg, Marianna is now 13.3 kg- not much time left ....
Why is the drug so expensive:
https://www.drugs.com/cdi/zolgensma.html
Please share it with your friends, perhaps we can still make it together and save this child from lifetime suffering.
Link to the main chairty page see total of funds raised so far: https://www.siepomaga.pl/en/marianna-sma
6 PLN = 2,23 EUR
10 PLN = 4,46 EUR
50 PLN = 11,15 EUR
