Help baby Julia to fight SMA

Julia is 4 months old. She’s an angel that just entered this word and already received “life sentence’” with SMA diagnosis. 

Please help her .EVERY LITTLE HELP MATTERS. Give her parents a hope. 

Julia comes from my home town in Poland. She’s been diagnosed with Spinal muscular atrophy (SMA

SMA is a genetic condition that causes muscle weakness and atrophy (when muscles get smaller). SMA can affect a child's ability to crawl, walk, sit up, and control head movements.

There are four types of SMA. Julia is type 1 and the only chance to live is the treatment with the Zolgensma (onasemnogene abeparvovec-xioi), the first gene therapy approved to treat children less than two years of age with spinal muscular atrophy (SMA), the most severe form of SMA and a leading genetic cause of infant mortality. 

Please don’t turn away. You have two hands. One to help yourself, the second

to help others.