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Skarbonka

UK for Kacper Boruta

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Organizator:Justyna Rogowska-Pers

Skarbonka została założona z inicjatywy organizatora, który odpowiada za jej treść.

Justyna Rogowska-Pers

Hi, my name is Justyna. I don't know Kacper myself, he's not a family member, not even a friend... But what I do know is that he is ill - SMA (Spinal Muscular Atrophy) Type 2 - incurable until recently. 

Last year an innovative gene therapy - Zolgensma has become available in the US! Great news! But not so great news is that this treatment is not funded by NFZ (Polish NHS) and it costs over $2.1million. That is over £1.6million to save Kacper's life. That's not it unfortunately... this therapy can only be performed on children under the age of two and Kacper is 17 months old now, which gives him and his parents only few months to miraculously find the money to save him.

I am a mother. My son is of a similar age to Kacper and I cannot imagine how does it feel to know a price for your child's life... Price that you cannot simply pay yourslef, not without help of others! As of today (12.02.2020) 56% of the goal has been reached! It breaks my heart even thinking about that there's still over £800k to 'find' in so little time.

Please, can you spare few pounds to help Kacper to live?

Thank you

Justyna x

2629 złCEL: 5000 zł
Wesprzyj
Wsparło 76 osób

Wszystkie środki zebrane na skarbonce trafiają
bezpośrednio na subkonto Podopiecznego:

Przekaż 1,5% podatku

Numer KRS0000396361
Cel szczegółowy 1,5%0060616 Kacper

Justyna Rogowska-Pers

Hi, my name is Justyna. I don't know Kacper myself, he's not a family member, not even a friend... But what I do know is that he is ill - SMA (Spinal Muscular Atrophy) Type 2 - incurable until recently. 

Last year an innovative gene therapy - Zolgensma has become available in the US! Great news! But not so great news is that this treatment is not funded by NFZ (Polish NHS) and it costs over $2.1million. That is over £1.6million to save Kacper's life. That's not it unfortunately... this therapy can only be performed on children under the age of two and Kacper is 17 months old now, which gives him and his parents only few months to miraculously find the money to save him.

I am a mother. My son is of a similar age to Kacper and I cannot imagine how does it feel to know a price for your child's life... Price that you cannot simply pay yourslef, not without help of others! As of today (12.02.2020) 56% of the goal has been reached! It breaks my heart even thinking about that there's still over £800k to 'find' in so little time.

Please, can you spare few pounds to help Kacper to live?

Thank you

Justyna x

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